The Founder of The Nerve of My Multiple Sclerosis (MS), Nathalie Busari, has raised concerns about the lack of awareness and information on multiple sclerosis (MS) in Nigeria. She made this appeal during a media briefing held in Lagos on Wednesday, calling for better education, support systems, and government intervention to aid those affected by the condition.
Raising Awareness and Providing Support
Busari, a survivor of MS, highlighted the organisation’s goal to provide a reliable resource for individuals experiencing MS symptoms or those already diagnosed but uncertain about their condition.
“We recognise that there isn’t much information available about multiple sclerosis in Nigeria, so we’re here to raise awareness. We want people to have a place to turn to when they experience symptoms or if they already have symptoms but are unsure of what’s happening,” she said.
She further explained that the organisation’s initial focus is on establishing a presence in Nigeria, with plans to organise health summits and awareness campaigns in the future.
Understanding Multiple Sclerosis
Busari described MS as a chronic neurological condition in which the immune system—normally responsible for protecting the body—mistakenly attacks the central nervous system, including the brain and spinal cord.
“This leads to the formation of lesions, which damage the protective covering around nerves. Imagine an electrical cable with its outer insulation stripped away, leaving the tiny wires exposed. That’s how MS works,” she explained.
While MS is a progressive disease with no known cure, Busari emphasized that treatments exist to slow its progression and manage symptoms.
She also addressed a common misconception that MS only affects people over 30 years old, stating that children as young as two years can develop the condition.
Cultural Misconceptions and the Need for Education
Bamidele Busari, another member of the organisation, highlighted the importance of empowering medical professionals and the public to correctly identify MS symptoms.
“Our beliefs can influence how we interpret symptoms. Some people may misattribute MS symptoms to other causes when, in reality, it is the body fighting itself,” he said.
Oyefunso Orenuga, the Nigerian representative of the group, expressed concern over how cultural and religious beliefs in Nigeria contribute to misunderstanding MS.
“In this country, we are very spiritual and religious. Many might say, ‘Ah, it’s a spiritual attack,’ instead of recognising it as a medical condition. But the earlier it is diagnosed and treated, the better,” Orenuga said.
She clarified that MS is not a terminal illness and that with proper treatment, individuals can live long and fulfilling lives.
Calling for Government Intervention
Ibidunni Alakija-Ladapo, another representative of The Nerve of My MS, urged the Nigerian government to take urgent action by making MS treatments more accessible and affordable.
“The government should address multiple sclerosis on multiple levels. MS occurs when the immune system, which is supposed to protect the body, starts working against it,” she said.
She suggested that the government adopt a similar approach used during the HIV/AIDS crisis, including:
- Subsidising treatment costs
- Increasing public awareness
- Engaging the private sector in MS advocacy and research
Looking Ahead
The Nerve of My MS continues to advocate for more research, better access to treatment, and public education to ensure that MS patients receive timely diagnosis and adequate care.
With increased awareness and government support, the group hopes to improve the quality of life for MS patients across Nigeria.